CURRENT INFORMATION

August 6th 2001 At the moment we are just waiting for Toms blood to recover from the FLAG treament, this could take 2, maybe 3 more weeks, and then he will have a bone marrow test to see if they have destroyed the Leukemia. I asked to doctors if we could go home with him and they agreed. He is currently well in himself, he's not running any temperatures, although he does have a sore mouth.

He contracted tonsillitis which they treated with some anti-biotics and penicillin, the yellow spots in his throat are gone, but he still has a very sore mouth which is bothering him, this is also an effect or the remaining chemotherapy in his body which effects fast growing cells in the mouth and other areas.

We still haven't moved into the new house, but plan to do so on Sunday, as long as Tom does not end up back in hospital.

We still have to take him back to the hospital each day for GCSF injections until his blood starts to work on it's own, I am not sure how long this will be, but I suspect at least 7-10 days before we see anything.

August 6th 2001 Finally we have some good news!! We met with the consultant today, and the smile on his face gave it way, Amy's bone marrow is a perfect match for Tom (A 1 in 4 chance it would have been a match). It goes without saying this is excellent news, and helps to increase his prognosis. It's one step ahead of where we are right now as we still have to get him into remission, we will not know if the FLAG worked for at least 2 weeks, maybe 3.

Signs are good so far, his gums are a LOT better for the first time since we came in and no aches in the bones, so we're hopeful. Presuming he is in remission he will go for one more round of chemo (FLAG with IDA) and then it will be time to prep for the bone marrow.

The bone marrow has many issues to it, such as a large amount of isolation and partial isolation (no mixing in groups and only fresh prepared food etc, no Pizza Hut!!) for 6 months afterwards, but this is a small price to pay if it means getting Tom back on his feet.

Currently he is doing very well, full of energy (after 2 bags of blood last night) and is not feeling sick, his appetite is coming back although he's not eating enough to put on weight, at least he is eating something. Please feel free to put in a post to Tom or send him an email (tom@thekassars.com) , he is now fully wired up with his laptop and wireless connection.

Perhaps a little email to amy ( amy@thekassars.com would be nice as she is obviously a little left out and probably feels a little bit like a replacement car part right now!

August 5th 2001 Sorry for the delay, busy times as usual. Here's where we are up to. Tom completed the FLAG treament by Friday morning, this was a dose 22 times the regular dose (2,200 milligrams per square meter of body surface, normal is 100mg). He was a little sick at times and lost a couple of pounds as he was having difficulty eating due to the sickness. They increased his anti sickness medication and added other components, plus he has anti viral and eye drops every 2 hours as he eyes are open to conjunctivitis, we're talking a LOT of medication!

He's back on his feet now, and he's starting to eat breakfast and a little food during the day, overall he lost 2lbs which we are now going to try and get him to put back one.

His blood is flat so he is open to infection, we expect it to take around 3 weeks for his blood to return to a level where he can have a bone marrow test, at which point we hope to receive some good news of a remission, in the meantime it will just be a waiting game.

With regards to the test of Amy matching for a bone marrow test, unfortunately we do not have the results yet, due to the consultant failing to call for the results (he's actually not our consultant, ours was away, ours was back and had not followed up either), therefore it looks like it will be Monday before we know, as soon as I have information I will post it to the site.

On another note we have finally received delivery of his laptop, plus I have obtained a replacement for the wireless HUB (it turned out that the first one was defective), after a lot of messing around he is finally on the net, surfing away. We also have a web camera for video conferencing, anybody interested in doing this should go to Microsoft and download the latest version of NETMEETING, we are having some trouble getting the directory up though, Tom has registered using 'netmeeting@aspirenet.com' in theory you should be able to place a call to that email address, however we had problems, no idea why at the moment.



July 29th 2001 It is with regreat that I have to inform everybody that today we received bad news.Tom had the bone marrow test which confirmed without a doubt that he still has Leukemia (70% blast cells), basically it was resistant to the medication, this happens in around 10% of the cases. As he has now completed his 2nd chemotherapy this is not good news at all, it means he must receive a bone marrow transplant if he is to stand a chance of beating this, tomorrow they will test Amy tomorrow and we should have the results of the test by of the week.

Before he can have a bone marrow transplant, the leukeumia has to be destroyed and he must be put into remission, this is where a very high dose of chemotherapy medication comes in. They will put him on FLAG which is a combinatation of drugs, one of them being the drug he is on now but a considerably higher dose along with GCSF which will promote the growth of cells, the idea being make the leukemia grow and then bash it to bits with the strong chemo.

We have been informed that the further we go down this path the worse the outlook, and this has been an unfortunate stumbling block that has moved us up a category as far as his prognosis is confirmed. Highly disappointing for all of us. Tomorrow he will also have an echo scan to ensure his heart is okay as the medication could have effected it (this is just a precaution and they don't expect a problem), this is especially an issue when he is preparing to receive a considerably higher dose.

July 27th 2001 Well today was a VERY long day. Tom went to hospital for his daily GCSF injection (to stimulate the regrowth of his cells) and Nicola was told that the consultant would like to talk to her, then another doctor mentioned she had overheard a conversation about him not being in remission. After many hours (the consultant was with other patients) we met with him and received the current information. He has produced a large amount of LUC cells, cells which basically have no identity and have not decided what to turn into, with his count this high they would expect him to produce neutraphils, which he is not doing still. He also mentioned that he thought he may have seen something unusual in the blood, which may point towards him not being in remission.

The only way to be sure would be a bone marrow test, however this was not set up until Wednesday, after explaining we were more than anxious the consultant agreed to do it this Sunday. The test will reveal one of two scenarios, either he is not in remission or he is clear. If he is not in remission then there would be leukemic cells and there would be no doubt about this, however if he is in the clear, as the cells are still so new, another test will be required, probably a week on Wednesday.
If he does have the Leukemia still then he will have to go in to hospital again and receive a 3rd round of chemotherapy, this will be one of the components of his original treatment but in a much, much stronger dose, potentially this can make him sick, althought sometimes people are okay with it, Tom handles it all very well, so we're hopefull that he would be okay with it, of course not having to go down this path is more desirable, if he is not in remission then the prognosis becomes far from favorable

He is currently very well in himself, although suffering from swollen gums still due to low platelets, he received a platelet transfusion today. I will post more information as soon as I receive it, although Sunday may be a little messy.

July 23rd 2001 Tom was sent home on the 22nd, we had not really expected it, his blood was a little low, but we had been spending day after day on the ward just waiting around, we ask a doctor to check into it and sure enough they agreed to let us go home and return to hospital for his daily injections of GCSF (to make his blood come back up).

We've had him at home for a couple of days and if all goes to plan we *may* have him home for up to 3 weeks! Bone marrow tests are performed on Wednesdays but his blood will not be at a high enough level, so we will have to wait until the following Wednesday (August 1st, Amy's birthday), then if all is ok he will start his 3rd round of chemotherapy a week on Monday, which gives him time to build up his strength again, which would bring us to the 13th of August (It's actually 22 days out of hospital)

In a few more days we hope his blood will be at a level where he no longer requires the GCSF injections and then we will not have to make the daily trips to the hospital, we just monitor his temperature, change his Hickman line dressing and take care of his teeth (His gums give him problems - swollen - due to the low platelet count), keep him aways from groups of people, and enjoy the time!

Check out the main home page as I have added more photographs, a birthday page with video and more information about the fund raiser.

As usual Tom is doing very well in himself, he is off antibiotics, and is in good strength, apart from a headache yesterday he is feeling just fine, although a little bored at home, but we'll take care of that, besides we are finally supposed to be moving into the new home any day now, I think I'll wait until the weekend, just a few final tweaks to take care of.

July 17th 2001 Lots happening today. His blood was low, so as I type this he is having a platelet transfusion, once he has had that he will also have a blood transfusion. He is receiving the GCSF injections (into his hickman line) which will help him boost his cells back up, at the moment his blood is totally flat with no neutrophils to protect him against infection, low platelets (clotting agent - low = bleeding gums and bruises) and low Hemoglobin (carrys oxygen around the body - low = tired), we expect to see changes in the next 4-5 days. He has had a temperature for a few days which means that he is still on the antibiotics (2nd level at the moment), add that to a sore tongue and eyes and you'd think he would be really down, but infact he is still holding high spirits, this is one seriously tough kid!!!

His hynotherapist came today, very interesting, he basically put suggestions to him that he was going to get better and get out of here, using his mind as well as his medication so that they work together and that he will always be in good spirits and strong and these feelings will always continue, that was the basic idea, to build his mental well being. Oh, and at Toms request he is also removing his fear of fast rollercoasters, I'm not sure if he is messing with me (As you all know he has a sharp sense of humor) but he's now telling me he will go on the Hulk at Universal Studios on his next visit to the USA, ummm.. we will see... any volunteers to ride with him ??? =;-) .. OH he won't do dueling dragons, but I don't blame him, I won't go on that brain bashing ride either, it's horrible! That's about it for today..

July 13th 2001 Ok...ok.. I know.. another late update.. as usual it's been hectic. The birthday went as good as expected, Tom was allowed to go out of hospital, but he is still open to infection so we had to keep him away from people and not do anything crazy, go-carting was definately out!. We went to TGI Fridays with a few friends that Tom has made in the hospital and then he went home, he did get to sleep at home which was nice, of course going back to the hospital was rather depressing, a mere 16 hours at home made it feel like life was back to normal!

After the party Tom was a little down and had a temperature (nothing to do with taking him home), another round of antibiotics, it looks like he has an infection (temperature up at around 38.5). Tests are being ran for a kidney infection. His blood is currently flat (no resistance to infections) and he had to receive platelets as his were very low. As he did not have a lot of time to recover from the first round of chemo due to the bad reading it is taking a greater toll on him, although he is not extremely sick he is by no means on top form at the moment and is generally quite tired.

It may be over 2 weeks before his next bone marrow test which will tell us how the chemo worked, we are hoping he will go into remission otherwise the medication will have to change and this will probably make him sicker as it will be a lot stronger.

We have had little to no connection to the internet here, long story, I am working on that one! I hope to have him start replying to emails soon.

The pictures and video clips area has been updated.

I almost forgot to help Tom with his mental strength, we met with a hypnotherapist the other day, he's going to start with him Tuesday, and he's also going to help him get over his fear of rollercoasters (a little bonus), he will make him is own self hypnosis CD to compliment the therapy that he will give him. Tom is very strong anyway, but we feel there is nothing to lose in topping this up.

July 7th 2001 I can't believe where the time has gone! The 2nd round of chemo is complete, everything went ok, no problems or sides effects and he handled it very well. We did have one issue where a nurse failed to give him the final does of his chemo and he had to receive it in the evening, needless to say this is rather disappointing but they assure us that it will not make any difference. It has been very hot and sunny for the past few days so the hospital has been rather uncomfortable as there is no air condition (Hey, it's normally cold in the U.K.). Tom has put on some weight, around 8lb's which is good, we are trying to bulk him up, if he ever gets ill and does not eat extra weight will be an advantage for him and could help to keep him up the drip feeds that some other children in the ward currently require.

His spirits are high and we have been told they will allow him to go home for his birthday, we're not sure what we are going to do yet, no real plans, just enjoy the day, we believe some of his friends from hospital will be attending.

It's raining/thunder and dark today but it's not too cold. Tom has made friends with a girl called Beth who is 12 years old and a baby called Amy who is 1 year old, they both have AML (but different type). He spends a lot of time with Beth and they really enjoy each others company. Beth and Amy went home at the weekend for over a week, Beth wanted to come back and visit Tom, she didn't want to leave :) .. Tom is a little bored now that they have left.

We receive blood tests results every single day, and is white blood cells are virtually none existent due to the chemotherapy, which is fine as they need to remove all the bad cells/bone marrow (These help him fight infection). His platelets (which help blood clot) keep going down, and he receives transfusions, this is normal and his red cells have just gone down so he is receiving two bags of blood right now. He did have a slight reaction to the platelet transfusion the other day, but just a minor rash (a few heat lumps) that was easily controlled with medication (and itching skin).

Yesterday Nicola asked the doctor to take a look at the blood under the microscope (they daily tests are the counts as mentioned above no under the microscope), they do tests under the microscope but I believe it's not always daily. Due to the fact that his white cells are under chemo and more or less destroyed it is difficult to get a good picture of the situation until they start to come back and he has another bone marrow test. If you have been following these notes you will know that last time we had a test just before his first bone marrow test that the doctor saw what he thought were abnormal cells which did prove to be leukemic when they did the bone marrow test, anyway... the when the doctor looked under the microscope yesterday he did not see any bad cells at all!

The above is good news, but I have to stress that they are in no way conclusive of him going into remission due to the lack of cells in his blood the test is not that accurate, however, it's better than hearing that he did see some. It will be around 3 weeks before we hear whether he is in remission or not when he has another bone marrow test.

June 30th 2001 Tom is on his third day of his 2nd round of chemotherapy this evening. His is taking it well so far with no problems. He could be sick from this as he has not had time to recover from the first round, but due to the urgency of the previous blood test we had no choice, hopefully he will be okay. This round will last for 8 days, then we wait around 20 days for another bone marrow test.

Tom has made good friends with a little girl called Amy, she is two in September, she also has AML, plus another girl, Beth, she is almost 13. I don't have my camera right now, but will post a picture after the weekend. Oh, Tom has finished Zelda!!!

June 28th 2001 This afternoon Tom had the big test, the bone marrow and lumber puncture. This is a quick test and it went ok although he feels a little tired and sickly at this moment. Around 90 minutes after the procedure we received the results of the test and unfortunately they were not what we really wanted to hear. The doctor has informed us that he has not gone into remission, which means that the first round of chemotherapy was not as effective as desired and therefore his bone has regenerated bad, Leukemic cells (70% Blast Cells remaining). Obviously this is upsetting to all of us, but we are dealing with it. He is not officially back in hospital and will start his 2nd round of chemotherapy later today. Obviously we wanted a remission in the first round however it is a fact that 30% of people do not go into remission on the first round. That's about all I can say at the moment nothing else is happening, we will continue to fight on.

June 27th 2001 Once again I have to apologise for not updating for several days, it's amazing how fast time flies and as usual its been hectic.

The last few days have been up and down, unfortunately finishing on a down. I will explain below
After I released the good news on the 22nd of the blood increase we received some bad news (I KNEW I should have waited before reporting it), for an unknown reason it appeared that his blood had returned to the level it was at before the good results. The increase was so high that we feel that his blood must have been mixed up with somebody else, although nobody is saying that is the case, we believe this must have happened.

As below, I mentioned they normally give an injection of GCSF to stimulate the bone marrow to produce the cells, unfortunately these unusual results did slow down this process as they thought he was making a recovery without it, however on June 24th he started the GCSF to stimulate the production of cells.

His blood picked up ever so slightly, and then out of the blue on Tuesday 26th we were told he was going home for up to 10+ days before he starts his next dose of chemotherapy, although it would entail several routine trips back to the hospital for tests. On the Wednesday 27th (Today) he was due to have a bone marrow test, however... He ate some breakfast at 10am and we were told he should not have eaten, we were told by the nurse when we left that he could eat up until 10am, but they tell us this was wrong, we thought it was a little strange and I guess we should have realized that this was a mistake, besides this problem, his platelets in his blood were too low anyway.

We were then told he had to have a line put into his leg to receive daily doses of GCSF, however I queried this with his doctor as to why he needed another needle when he has the hickman line and apparently to receive it through his line he needed to have a bed on the hospital ward... And the hospital was full!!! ..Of course as we had just been discharged only 12+ hours before this important test, needless to say I was rather upset.

After more discussion with the doctor and nurse they said they would try to find a bed later that evening, since I had expressed my concerns.

We arrive back around 1 hour later after taking Tom to a quiet corner of a McDonalds and received some potentially bad (and upsetting) news, that the doctor had examined the blood sample and felt that he had noticed some unusual looking cells, which may suggest that he is not into remission, he also pointed out that he only has a few cells in the blood and that his findings are not conclusive it is difficult to be sure and hence the bone marrow is required a.s.a.p. Because of the urgency of the situation they have now given him a slot in the main operating area where they can do a test tomorrow morning. They will start to increase he platelets with a tranfusion in the early hours (June 28th) and then in the morning he will be tested. We are keeping our fingers crossed that the leukemic cells have been destroyed, otherwise he will start his 2nd stage of chemotherapy immediately.

This has the potential to become a little crazy over the next day or so but I will do my very best to keep you all up to date. Please feel free to continue to post your notes of encouragement into the guest book which Tom reads more or less every day.

On a final note, at the beginning of next week they will test Amy to see if she is a good match for a bone marrow transplant, although a transplant is not a definate at this stage, it is something that we will start to prepare for.

June 22nd 2001: GOOD NEWS! Before I give the good news.. Sorry for the slow updates again, it's been extremely hectic with work/hospital and travel, plus we're trying to get into our new house.

Now on to the good news, first of all, over the last 72 hours his temperature has returned to normal, so he's off the antibiotics as of yesterday, and the news gets better! His consultant visited us today to let us know that his blood appears to have made significant progress!

To try and explain the relevance of this, apparently the majority of people require medication to 'kick start' their bone marrow to produce the necessary cells (Once they start chemotherapy it stops the bone marrow working), normally after a few weeks, otherwise the majority of cases take 5+ weeks to start up again..Super Hero Tom appears to have started his own production of cells. His White Blood Cells have started to come up and the other excellent sign is that for the first time since the therapy he has started to produce his own Platelets (Which his body uses for blood clotting). These have constantly been going down and requiring transfusions, last night he made his own, up from 18 to 39, this is just the news we have been waiting for, even the percentage of his neutrophils (I think that is spelt correctly) have changed for the good from 3% of his white cells to 19.4% (We are looking for 40-75%).

All of these changes happened within the last 24 hours, and if all goes to plan he will have a bone marrow test one Wednesday which will tell us how effective the first round of chemo has been. If all goes to plan we may be able to take him home for a week at the end of next week.

June 18th 2001: It looks like he has developed an infection as he has a temperature, so he's receiving a good dose of antibiotics through the Hickman line. He heart seems to have settled down which is a relief, even though it runs at 100+ bpm. He has developed a bad rash over his body over the last few days which we believe is a reaction to his previous chemotherapy. To top it off the hair as now started to fall out, it comes out very easily and it looks like we'll (as per Tom's instructions) be shaving it all off tomorrow for that 'Get out of my way I'm a physco' look. Oh yeah.. and he's doing really well with the Zelda game :)

June 18th 2001: No news was actually good news!! Sorry for not updating, I slept at the hospital and the net connection was out! Anyway, today we took another step in the right direction!

We have just met with his consultant and he gave us the good news that his chromosome test has come back and if he needs a bone marrow transplant he is able to accept one and he does not have any abnormalities. Apparently 90% of people they test with Leukemia have a disorder of some sorts, only 10% are ok! Excellent news!

In 10-14 days Amy and Tom will be tested for a match, 25% of the time there is a match. We're keeping our fingers crossed. If there is no match they will start to run a match on the world wide database.

If you check out the photographs you will also see that Tom also decided to shave his head, he was losing a lot of hair and this was uncomfortable for him especially in the evening.

He's doing very well in himself, the usual Tom with his high spirits and great sense of humour (spelt 'humor' for our American friends out there), demonstrated when he filled a shringe with water and zapped the nurse (Jo).

Thanks to everybody for sending the letters of support and presents, it's a big boost for him. By the way... We'd like to know who sent us the music CD through Amazon? (Destinys Child), there did not seem to be any name with the package? (Email tom: tom@thekassars.com

June 12th 2001: It's official, the chemotherapy is doing it's thing, Tom's hair is started to fall out. Tom has made the decision to shave off all of his hair before he has multiple bald spots, we agree with this, besides the thug look in the UK is quite fashionable :)

Not much else going on, no heart problems. no sickness, he looks and acts like he's ready to go to the beach! His blood count is still low we're just waiting for the cells to start to regenerate themselves, the sooner the better so he can get out of here and go home for a week! From what we've discussed, this could take as long as two weeks. I am real busy with work right now but will try and get more photo's and video up there within the next 24 hours, I may be able to upload some later today. His physiotherapy has worked well and his arm now has full motion (the hickman line caused him problems in that area - soreness etc)

June 11th 2001: Sorry for the lack of updates, it's been a busy time and I have had some computer issues. As of tomorrow I'll finally be back up to speed. Not much changed. His first course of chemotherapy is over and we are waiting for his blood count to build back up. He has handling it very well, and we're all very proud of his postive attitude. The only issue we have is with his hickman line, which is causing intermitant problems with his heart, today he had his 3rd episode which sent his heart rate up to 230 beats per minute! It calmed down on it's own eventually. The problem is that pulling the line back a little may give him an infection which would not be good so he is still under observation. I am hoping to have another chat with the doctors tomorrow.

I bought him a Nintendo 64 today as he has played his 24 or so Dreamcast games and is already bored with them, oh and we bought him a steering wheel for the 18 wheeler and the Ferrari game, I bought this for Tom...honest =;-) . Over the next day or so I'll try and get more photo's and video on the site

June 6th 2001: Heart rate still too high, he had an ECG which confirmed his heart was ok, just something was bothering him, the concensus was that it was the line, sitting him up demonstrated a rise from around 85 or so up to almost 130. He is on a mini ECG now whilst he is observed. They decided they do not want to take the line back a little incase he gets an infection from the procedure which would cause him problems with his present blood situation (No defences). If it happens again they may have to go ahead with the procedure, which is very simple. He is eating well and we think he may have gained a massive one pound in weight.. *maybe*, we're not sure if he had some clothes on when previously weighed. Got some hats from Mrs Winton which he was VERY happy about and also a hat from Neopets.com made especially for him, we can see this hat thing is going to be a real fun way to handle this, I will have photo's up soon (my Laptop is not compatible with the camera, I have to go home to take them off until I get an adapter), we are also going to add some video for download, they have some cool toys in the hospital including a v.expensive holographic device of some sorts I will get to see this shortly.

He has a little bit of pain in his neck and mouth, the medicine causes these sores and there is little we can do. He has 2 more days of chemo, then we wait for a few weeks before repeating and getting results. In 3 weeks we hope to take him home for a week, that will be nice for all of us for many reasons.

Btw: The Hickman line was put in too far, it should be just at the entry of the heart, but his is inside, they realized this when it was installed but thought it would be ok, time will tell. We will have his email set up shortly and should be able to start replying to the many emails he has received.
June 5th 2001: Unfortunately I am unable to upload this page as I am typing this at the hospital and I am spending my first night here, whilst Nic goes home for the night to orphan Amy (I hope to have my own net connection at the hospital in the next day). Tom has been well in himself today, he is now taking the chemotherapy through the Hickman line (the tube into his chest) via single injections rather than the IV, which is better for him as he will not have the IV machine beeping every hour or so in the middle of the night.

As I type this we have a little episode with him, his heart suddenly started to beep very hard and fast making causing some intermitant pain. This did happen the other day, but only lasted a few minutes, this one has been going for over an hour. His heart rate is running at around 185 BPM but has been up to around 210, which, once over 200 started to give him pain. A doctor is on the way in, but nobody seems to be panicking just yet (apart from me). Once the doctor has visited I will add another line to these comments. Aside from that, not much going on, his appetite is still very good, no chance of him starving himself! Last time he was weighed he had neither lost nor gained any weight, still the same handsome, muscle bounty Tom.

The doctor arrived a little later on, his heart rate hit little over 220 for a short period of time. I notice it shoot up from just 190 or so to 220 when we sat him up and suspected something to do with the Hickman line. The doctor also felt it was the same problem. It settled down to 100-110 and he had a good nights sleep.

June 4th 2001: All going to plan still, an uneventful day, still off the IV and receiving treament at night only. Tom got to go on the Internet today, which he really enjoyed, the hospital school is next to his room, so he can walk to school at last. Just a small room with a few computers but adequate for his needs. The hospital have told us they will install a phone line for us, so any day now we'll be fully loaded, we'll be able to use AOL chat, check the web site there and reply to emails. We're also going to look at http://www.zone.com a Microsoft site that allows people to chat and also play games against each other over the 'Net!

June 3rd 2001: Another 'Good' day, all is going to plan, he came off the IV but has to drink a lot. He will be receiving chemotherapy this evening and is still high on spirits although a little tired. He will receive platelets this evening as his count is too low. I'm hoping he will have a good sleep this evening. Nothing else to report.

June 2nd 2001: Tom is currently taking liquids to keep him flushing his kidneys, which keeps him very 'regular', this effects his sleep and therefore he tends grab little sleeps during the day. His Hickman line is not giving him too much trouble and his shoulders and neck are no longer as painful as before. He still takes the anti-sickness medication and the chemotherapy. The drip goes around the clock feeding him the different combinations, the line is a lot easier to give him medication than a line in his hand as he does not have any discomfort when medication is entering his body.

When he first started taking the chemotherapy he became ill, and was sick several times, however after switching the anti-sick medication the next morning, it seemed to work very, very well and the sickness has gone, which is a big relief.

His is actually quite well in himself, his pale complexion has improved considerably which is mainly due to the blood transfusions, he looks real well, like he could just stand up, walk out of here and go play football. His spirits are high, along with his sense of humor, and he is eating well, better than when we were in the USA! It's nice to see him finish off a full plate of food each and every time. Although I get the feeling that he is starting to get a little bored now, even with the pile of Dreamcast games that we recently bought for him. He is asleep as I type this, I hope to get him more involved in these updates in the future.

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